Santa Cruz County Prostate Cancer Support Group

Resources

Home Newly Diagnosed Advanced Disease Drug Information

The following are online resources for prostate cancer. See also drug information page.

Websites lists popular locations for newly diagnosed patients to do research, as well as more specialized sites.

Mailing Lists/Discussion Groups lists online resources that may be subscribed to. Subscribers may contribute and receive prostate cancer information distributed via email or web forums. Some of these lists, such as P2P are posted to by physicians, who answer questions posted by the members.

Nutrition and Treatment resources

Prostate Cancer Websites:

Santa Cruz County Prostate Cancer Support Group

http://www.scprostate.org

Resource Kit for Making Prostate Cancer Decisions

http://ustoo.org/newpatientkit

Prostate Cancer Foundation

http://www.prostatecancerfoundation.org

Prostate Pointers

http://www.prostatepointers.org

Information for the newly diagnosed

http://www.prostatepointers.org/newlydx.html

Us TOO International Prostate Cancer Education & Support Network

http://www.ustoo.org

Prostate Cancer Research Institute (PCRI)

http://www.prostate-cancer.org/

UCSF Prostate Cancer Information

http://urology.ucsf.edu/patientGuides/uroOncPt_Doc.html

Patient Advocates for Advanced (Prostate) Cancer Treatments, Inc.

http://www.paactusa.org

Prostate cancer acronyms and abbreviations:

http://www.prostatepointers.org/prostate/ed-pip/acronyms.html

Prostate cancer glossary of terms:

http://www.prostatepointers.org/prostate/ed-pip/glossary.html

Information provided by Nicholas Bruchovsky, MD

http://www.prostatepointers.org/bruchovsky

Information provided by Fernand Labrie , MD

http://www.prostatepointers.org/labrie

Information provided by Robert Leibowitz, MD

http://www.prostatepointers.org/leibowitz

Information provided by Charles Myers, MD

http://www.prostatepointers.org/cmyers

Information provided by Jonathan Oppenheimer, MD

http://www.prostatepointers.org/virtual_lab

Information provided by Israel Barken , MD

http://www.prostatepointers.org/barken

Physician to Patient (1997-2006)

 http://www.prostatepointers.org/p2p
Organize your PC digest http://www.prostatepointers.org/p2p/pcd.html

SeedPods (Brachytherapy)

http://www.prostatepointers.org/SeedPods/

IceBalls (Cryosurgery)

http://www.prostatepointers.org/iceballs/

The PCAI list of Erectile Dysfunction specialists

http://www.prostatepointers.org/pcai/ed.html

The Circle (Words of Hope and Strength)

http://www.prostatepointers.org/circle/

Prostate Cancer Stages

http://www.texascancercenter.com/prostate.html#stages

Prostate Cancer Stages

 http://www.phoenix5.org/staging.html

Hormone Refractory Prostate Cancer by Charles E. Myers, MD -- PCa Medical Oncologist

http://www.hrpca.org/myers425.htm

zero -- The Project to End Prostate Cancer

http://www.zerocancer.org/index.html

PAACT (Patient Advocates for Advanced Cancer Treatment)

http://www.paactusa.org/

National Cancer Institute's Prostate Cancer Home Page

http://www.cancer.gov/cancerinfo/types/prostate

The Hypertext Guide to Prostate Cancer

http://www.hypertext.org

Prostate Problems Mailing List website

http://listserv.acor.org/diseases/prostate

Prostate Problems Mailing List archives

http://listserv.acor.org/archives/prostate.html

Urologychannel PCa resources

http://www.urologychannel.com/prostate/cancer/index.shtml

Prostate Cancer Research and Education Foundation (PC-REF)

http://www.pcref.org

MultiGraph: your medical history in graphic form, free from PC-REF. Contact John Fistere at JFistere@cox.net

 Contact John Fistere at JFistere@cox.net

Center for Prostate Disease Research

http://www.cpdr.org/

You Are Not Alone

http://www.yananow.net/

What Every Man Should Know About Prostate Cancer

http://www.yananow.net/USAMan.htm

Advice To The Newly Diagnosed

http://www.yananow.net/newbyadvice.htm

What Every Doctor Who Treats Male Patients Should Know

http://www.yananow.net/DonnasDoctor.htm

PSA Rising (Prostate Cancer Survivor News, Info, Support)

http://www.psa-rising.com

Chemocare.com (chemotherapy)

http://www.chemocare.com/

Sexual help for couples after prostate disease

http://www.renewintimacy.org/

Surviving Prostate Cancer Without Surgery

http://pca-survivingwithoutsurgery.com/

Prostate Cancer Action Network

http://www.prostatepointers.org/pcan/

Powerful search engines and tools:

 

Pubmed search

 http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
Pubget

http://pubget.com/site/search

Google

http://www.google.com/

Google Scholar (searches academic literature)

http://scholar.google.com/

 

 

Prostate Cancer Mailing Lists/Discussion Groups :

Prostate Pointers Mailing Lists. Created by Gary Huckabay and Nancy Peress. Now sponsored by US Too, Inc. For all the lists explore the website.

  • Seedpods webpage and active mailing list for Brachytherapy (seed implants)

  • Iceballs webpage and mailing list for Cryosurgery

  • PCAI Intimacy and sexuality. E-mail list for prostate cancer patients and partners.

  • The Circle Support and sharing experiences by E-mail for prostate cancer survivors, caregivers, family members and friends. Moderated by Nancy Peress. Sponsored by US Too, Inc.

  • Physician To Patient(P2P) This is a moderated list which provides the prostate cancer patient or other interested parties with information from physicians about the treatment of prostate cancer.

Prostate Problems Mailing List (PPML) One list for all. Open to patients, family, friends, physicians, researchers and others for the purpose of discussing prostate cancer. Sponsored by acor.org Experienced patient faciliators.

HRPCA www.hrpca.org  Patient produced information for the hormone refractory, late stage prostate cancer patient.

Prostate Cancer Action Network -- forum for discussing important issues affecting the care and treatment of prostate cancer survivors, and ways to bring about needed change. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/pcan

Prostate Cancer and Gay Men --To subscribe, go to: http://health.groups.yahoo.com/group/prostatecancerandgaymen/

Prostate Cancer Support --To subscribe, go to: http://health.groups.yahoo.com/group/prostatecancersupport/

Natural Prostate Treatments --To subscribe, go to: http://health.groups.yahoo.com/group/natural_prostate_treatments/

Advanced Prostate Cancer --To subscribe, go to: http://health.groups.yahoo.com/group/advancedprostatecancer/

Humor And Healing -- HAH is a humor list for the online PCa community, more intimate and friendly than the big Internet joke lists. To subscribe, go to http://www.prostatepointers.org/mailman/listinfo/hah

 

Prostate Cancer and Its Treatment

from the UCSF Patient Education Library,

"Prostate Cancer & Its Treatment"

"Active Surveillance for Prostate Cancer"

Nutrition and Prostate Cancer

A very popular topic among prostate cancer survivors. Here are some resources available on the Internet (courtesy of Howard Waage.)

Nutrition & Prostate Cancer by Natalie Ledesma, MS, RD. Cancer Resource Center. UCSF Comprehensive Cancer Center. University of California, San Francisco .. Download a copy at:

Nutrition and Prostate Cancer Day after day, the effects of dietary and lifestyle changes on the development and progression of prostate cancer are being discussed and explored by leading researchers in the field. Which foods and nutrients have been shown to be beneficial for patients with prostate cancer? How reliable are the data for nutritional strategies in prostate cancer? Are there foods or nutrients that might prevent prostate cancer or even prevent or delay a recurrence of the disease? By culling the data from the published literature, the Nutrition and Prostate Cancer guide offers a comprehensive, yet concise overview of where we are today in the search for nutritional approaches to prostate cancer—and reminds us how much more we have yet to learn about how key nutritional strategies can affect the development and progression of prostate cancer.
Download a copy at:

Credits: Original Research – Howard Waage,further editing – Paul Johnson

Last update: 1/31/10 pj