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The following are lists of online resources for prostate cancer.
"Prostate Cancer Websites" includes some of the more popular locations for newly
diagnosed patients to do research, as well as more specialized sites where
patients may go to get answers. "Prostate Cancer Mailing Lists/Discussion
Groups" is a list of online resources that may be subscribed to. Subscribers may
contribute and receive prostate cancer information distributed via email or web
forums. Some of these lists, such as P2P are posted to by physicians, who answer
questions posted by the members.
Prostate Cancer Websites:
Prostate Cancer Mailing Lists/Discussion Groups:
Prostate-Help Patients-Helping-Patients: Created by Don Cooley. For
men diagnosed with prostate cancer and for their loved ones. These web pages and
forums are dedicated to discussion of all phases of this disease and emotional
support facing the prostate cancer patient today. Features weekly Chat
session.
- Gateway page:
http://www.prostate-help.org - The
"Gateway" to what Prostate-Help has to offer - all non-commercial and created
by a prostate cancer patient - a virtual encyclopedia of prostate cancer
information. It is the portal to the specialized pages below, as well as a
wealth of information contained in the forums, where members may discuss
prostate cancer related topics. (No charge for membership, donations
accepted.)
- Information about prostate cancer:
Prostate
Cancer: This is a the virtual encyclopedia
flagship web site of Prostate-Help. Address http://www.prostate-help.org
Newly
diagnosed: This site is an easy to read site,
in an order that a newly diagnosed patient can grasp and move forward to a
treatment decision. It is for the "newbie". All the information is here, or
linked, that one needs to be well on their way to making the important
treatment decision along with his medical professionals.
- Help from others:
Prostate-Help Forums:
Here you can subscribe to the forums and ask questions of others in your
shoes. The forums are organized by topic, including conventional and
alternative treatments, advanced disease, watchful waiting, ladies only, and
many others.
Chat Rooms:
This is where we get together every Tuesday evening and hold on-line chats.
Sometimes we have doctors who are very knowledgeable about prostate cancer
as special guests. Address: http://www.chats.prostate-help.org.
- Research Centers:
Information
Database: The PHID
(Prostate-Help Information Database) now has about 1,800 items of
information that is directly related to the treatment of prostate cancer
today. These are studies and extensive review papers all categorized into
some 35 Topics and all searchable.
The
Prostate-Help Blog: Blog is short for
Weblog. It is a place where the webmaster can post information quickly of a
more general nature about prostate cancer and other things. It is a "current
happening" place. There also is a blog about famous men diagnosed with
prostate cancer. You can read stories of other men who have had prostate
cancer or publish your own story at the Blog called "The Stories".
Research - Research is a grouping of things
that will allow one to search about prostate cancer - on the internet, the
PHID, the websites. You can search by the last 30 , 60, 90 days of PubMed, 7
and 30 days of the PHID, Google is there, search FREE medical journals,
trials, and more.
- Unique Single purpose Sites:
PSA
Bounce/Bump: This is a very narrowly focused
site for those who have had a PSA bounce following radiation treatment of
any kind. Here you can fill out a form that will go into a database so
others can review and better understand what is happening if their PSA rises
after any kind of radiation.
The Don
Cooley Story: Don Cooley tells in this site
his day to day thinking during his treatment decision process and what has
happened since.
Prostate Pointers
Mailing Lists. Created by Gary Huckabay and Nancy Peress. Now
sponsored by US Too, Inc. For all the lists explore the website.
-
Seedpods
webpage and active mailing list for Brachytherapy (seed implants)
-
Iceballs
webpage and mailing list for Cryosurgery
-
PCAI
Intimacy and sexuality.
E-mail list for prostate cancer patients and partners.
-
The Circle
Support and sharing experiences by E-mail for prostate cancer survivors,
caregivers, family members and friends. Moderated by Nancy Peress. Sponsored
by US Too, Inc.
-
Physician To
Patient(P2P) This is a moderated list which provides
the prostate cancer patient or other interested parties with information from
physicians about the treatment of prostate cancer.
Prostate Problems Mailing
List (PPML) One list for
all. Open to patients, family, friends, physicians, researchers and others for
the purpose of discussing prostate cancer. Sponsored by acor.org Experienced patient faciliators.
In Memoriam : Edward James Price
a founder of the PPML in 1995, with tributes from "listers."
HRPCA
www.hormonerefractorypca.org
Patient produced information for the hormone refractory, late
stage prostate cancer patient.
Prostate Cancer Action Network -- forum for discussing
important issues affecting the care and treatment of prostate cancer
survivors, and ways to bring about needed change. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/pcan
Prostate Cancer and Gay Men --To subscribe, go to:
http://health.groups.yahoo.com/group/prostatecancerandgaymen/
Humor And Healing -- HAH is a humor list for the online PCa
community, more intimate and friendly than the big Internet joke lists. To
subscribe, go to http://www.prostatepointers.org/mailman/listinfo/hah
Nutrition and Prostate Cancer
This topic is a very popular one among prostate cancer
survivors. Here are some resources available on the Internet (courtesy of Howard
Waage.)
Nutrition &
Prostate Cancer by
Natalie Ledesma, MS, RD. Cancer Resource Center. UCSF Comprehensive Cancer
Center. University of California, San Francisco ..
Download a copy at:
Nutrition
and Prostate Cancer
Day after day, the effects of dietary and lifestyle changes on the development
and progression of prostate cancer are being discussed and explored by leading
researchers in the field.
Which foods and nutrients have been shown to be beneficial for patients with
prostate cancer? How reliable are the data for nutritional strategies in
prostate cancer? Are there foods or nutrients that might prevent prostate
cancer or even prevent or delay a recurrence of the disease?
By
culling the data from the published literature, the Nutrition and Prostate
Cancer guide offers a comprehensive, yet concise overview of where we are
today in the search for nutritional approaches to prostate cancer—and reminds
us how much more we have yet to learn about how key nutritional strategies can
affect the development and progression of prostate cancer.
Download a copy at:
Credits:
-
Websites – Nancy Peress, PPML
-
Prostate-Help - Don Cooley
-
Mailing Lists - Jacqueline Strax, PSA Rising
-
Research and moral support – Howard Waage
Last update:
09/19/2006
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