Santa Cruz County Prostate Cancer Support Group

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The following are lists of online resources for prostate cancer. "Prostate Cancer Websites" includes some of the more popular locations for newly diagnosed patients to do research, as well as more specialized sites where patients may go to get answers. "Prostate Cancer Mailing Lists/Discussion Groups" is a list of online resources that may be subscribed to. Subscribers may contribute and receive prostate cancer information distributed via email or web forums. Some of these lists, such as P2P are posted to by physicians, who answer questions posted by the members.

Prostate Cancer Websites:

Santa Cruz County Prostate Cancer Support Group

http://www.scprostate.org
Don Cooley's "Patients Helping Patients" Gateway to Web and Discussion Groups (See more detailed description below.) http://www.prostate-help.org

Prostate Cancer Foundation

http://www.prostatecancerfoundation.org

Prostate Pointers

http://www.prostatepointers.org

Information for the newly diagnosed

http://www.prostatepointers.org/newlydx.html

Us TOO International Prostate Cancer Education & Support Network

http://www.ustoo.org

Prostate Cancer Research Institute (PCRI)

http://www.pcri.org/

UCSF Prostate Cancer Information

http://urology.ucsf.edu/patientGuides/uroOncPt_Doc.html

Patient Advocates for Advanced (Prostate) Cancer Treatments, Inc.

http://www.paactusa.org

Prostate cancer acronyms and abbreviations:

http://www.prostatepointers.org/prostate/ed-pip/acronyms.html

Prostate cancer glossary of terms:

http://www.prostatepointers.org/prostate/ed-pip/glossary.html

Information provided by Nicholas Bruchovsky, MD

http://www.prostatepointers.org/bruchovsky

Information provided by Fernand Labrie , MD

http://www.prostatepointers.org/labrie

Information provided by Robert Leibowitz, MD

http://www.prostatepointers.org/prostate/leibowitz

Information provided by Charles Myers, MD

http://www.prostatepointers.org/cmyers

Information provided by Jonathan Oppenheimer, MD

http://www.prostatepointers.org/virtual_lab

Information provided by Israel Barken , MD

http://www.prostatepointers.org/barken

Physician to Patient

http://www.prostatepointers.org/p2p

SeedPods

http://www.prostatepointers.org/SeedPods/

IceBalls

http://www.prostatepointers.org/iceballs/

The PCAI list of ED specialists

http://www.prostatepointers.org/pcai/ed.html

The Circle

http://www.prostatepointers.org/circle/

Organize your PC digest:

http://www.prostatepointers.org/p2p/pcd.html

Tom Feeney's Watchful Waiting page:

http://www.prostatepointers.org/ww/

Search prostatepointers.org

http://www.prostatepointers.org/search_form.html

Prostate Cancer Stages

http://www.texascancercenter.com/prostate/stages.html

http://www.phoenix5.org/staging.html

"Comprehensive Management of Prostate Cancer" by Charles E. Myers, MD -- PCa Medical Oncologist

http://www.hormonerefractorypca.org/myers425.htm

National Prostate Cancer Coalition

http://www.pcacoalition.org/

PAACT

http://www.paactusa.org/

Prostate Cancer Resource Guide

http://www.afud.org/pca/pcaindex.html

National Cancer Institute's Prostate Cancer Home Page

http://www.cancer.gov/cancerinfo/types/prostate

The Hypertext Guide to Prostate Cancer

http://www.hypertext.org

PPML website

http://listserv.acor.org/diseases/prostate

PPML archives

http://listserv.acor.org/archives/prostate.html

Urologychannel PCa resources

http://www.urologychannel.com/prostate/cancer/index.shtml

Prostate Cancer Research and Education Foundation (PC-REF)

http://www.pcref.org

MultiGraph: your medical history in graphic form, free from PC-REF. Contact John Fistere at JFistere@cox.net

 Contact John Fistere at JFistere@cox.net

WellnessWeb Prostate Cancer Center

http://www.wellnessweb.com/PROSTATE/prostate.htm

Center for Prostate Disease Research

http://www.cpdr.org/

You Are Not Alone

http://www.yananow.net/

What Every Man Should Know About Prostate Cancer

http://www.yananow.net/USAMan.htm

Advice To The Newly Diagnosed

http://www.yananow.net/newbyadvice.htm

What Every Doctor Who Treats Male Patients Should Know

http://www.yananow.net/DonnasDoctor.htm

PSA Rising Magazine

http://www.psa-rising.com

Chemocare.com

http://www.chemocare.com/splash/splash.sps

Sexual help for couples after prostate disease

http://www.renewintimacy.org/

Surviving Prostate Cancer Without Surgery

http://www.survivingprostatecancerwithoutsurgery.org/

Prostate Cancer Action Network

http://www.prostatepointers.org/pcan/

Powerful search engines and tools:

 

Pubmed search --

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
Others --

http://www.google.com

 

http://www.copernic.com/

 

http://www.search.com/

 

 

Prostate Cancer Mailing Lists/Discussion Groups:

Prostate-Help Patients-Helping-Patients: Created by Don Cooley. For men diagnosed with prostate cancer and for their loved ones. These web pages and forums are dedicated to discussion of all phases of this disease and emotional support facing the prostate cancer patient today.  Features weekly Chat session.

  • Gateway page: http://www.prostate-help.org - The "Gateway" to what Prostate-Help has to offer - all non-commercial and created by a prostate cancer patient - a virtual encyclopedia of prostate cancer information. It is the portal to the specialized pages below, as well as a wealth of information contained in the forums, where members may discuss prostate cancer related topics. (No charge for membership, donations accepted.)

 

  • Information about prostate cancer: 

Prostate Cancer: This is a the virtual encyclopedia flagship web site of Prostate-Help. Address http://www.prostate-help.org

Newly diagnosed: This site is an easy to read site, in an order that a newly diagnosed patient can grasp and move forward to a treatment decision. It is for the "newbie". All the information is here, or linked, that one needs to be well on their way to making the important treatment decision along with his medical professionals.

  • Help from others:

    Prostate-Help Forums: Here you can subscribe to the forums and ask questions of others in your shoes. The forums are organized by topic, including conventional and alternative treatments, advanced disease, watchful waiting, ladies only, and many others.

    Chat Rooms: This is where we get together every Tuesday evening and hold on-line chats. Sometimes we have doctors who are very knowledgeable about prostate cancer as special guests. Address: http://www.chats.prostate-help.org.

  • Research Centers:

    Information Database: The PHID (Prostate-Help Information Database) now has about 1,800 items of information that is directly related to the treatment of prostate cancer today. These are studies and extensive review papers all categorized into some 35 Topics and all searchable.

    The Prostate-Help Blog:  Blog is short for Weblog. It is a place where the webmaster can post information quickly of a more general nature about prostate cancer and other things. It is a "current happening" place. There also is a blog about famous men diagnosed with prostate cancer. You can read stories of other men who have had prostate cancer or publish your own story at the Blog called "The Stories".

    Research - Research is a grouping of things that will allow one to search about prostate cancer - on the internet, the PHID, the websites. You can search by the last 30 , 60, 90 days of PubMed, 7 and 30 days of the PHID, Google is there, search FREE medical journals, trials, and more.

  • Unique Single purpose Sites:

    PSA Bounce/Bump: This is a very narrowly focused site for those who have had a PSA bounce following radiation treatment of any kind. Here you can fill out a form that will go into a database so others can review and better understand what is happening if their PSA rises after any kind of radiation.

    The Don Cooley Story: Don Cooley tells in this site his day to day thinking during his treatment decision process and what has happened since.

Prostate Pointers Mailing Lists. Created by Gary Huckabay and Nancy Peress. Now sponsored by US Too, Inc. For all the lists explore the website.

  • Seedpods webpage and active mailing list for Brachytherapy (seed implants)

  • Iceballs webpage and mailing list for Cryosurgery

  • PCAI Intimacy and sexuality. E-mail list for prostate cancer patients and partners.

  • The Circle Support and sharing experiences by E-mail for prostate cancer survivors, caregivers, family members and friends. Moderated by Nancy Peress. Sponsored by US Too, Inc.

  • Physician To Patient(P2P) This is a moderated list which provides the prostate cancer patient or other interested parties with information from physicians about the treatment of prostate cancer.

Prostate Problems Mailing List (PPML) One list for all. Open to patients, family, friends, physicians, researchers and others for the purpose of discussing prostate cancer. Sponsored by acor.org Experienced patient faciliators.
In Memoriam : Edward James Price a founder of the PPML in 1995, with tributes from "listers."

HRPCA www.hormonerefractorypca.org  Patient produced information for the hormone refractory, late stage prostate cancer patient.

Prostate Cancer Action Network -- forum for discussing important issues affecting the care and treatment of prostate cancer survivors, and ways to bring about needed change. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/pcan

 Prostate Cancer and Gay Men --To subscribe, go to: http://health.groups.yahoo.com/group/prostatecancerandgaymen/

Humor And Healing -- HAH is a humor list for the online PCa community, more intimate and friendly than the big Internet joke lists. To subscribe, go to http://www.prostatepointers.org/mailman/listinfo/hah

Nutrition and Prostate Cancer

This topic is a very popular one among prostate cancer survivors. Here are some resources available on the Internet (courtesy of Howard Waage.)

Nutrition & Prostate Cancer by Natalie Ledesma, MS, RD. Cancer Resource Center. UCSF Comprehensive Cancer Center. University of California, San Francisco .. Download a copy at:

Nutrition and Prostate Cancer Day after day, the effects of dietary and lifestyle changes on the development and progression of prostate cancer are being discussed and explored by leading researchers in the field. Which foods and nutrients have been shown to be beneficial for patients with prostate cancer? How reliable are the data for nutritional strategies in prostate cancer? Are there foods or nutrients that might prevent prostate cancer or even prevent or delay a recurrence of the disease? By culling the data from the published literature, the Nutrition and Prostate Cancer guide offers a comprehensive, yet concise overview of where we are today in the search for nutritional approaches to prostate cancer—and reminds us how much more we have yet to learn about how key nutritional strategies can affect the development and progression of prostate cancer.
Download a copy at:

Credits:

  • Websites – Nancy Peress,  PPML

  • Prostate-Help - Don Cooley

  • Mailing Lists - Jacqueline Strax, PSA Rising

  • Research and moral support – Howard Waage

Last update: 09/19/2006